Because children experiencing epileptic seizures can hurt themselves, it is important to think of safety measures that can prevent injury. Check your child's room for furniture or sharp objects that could cause injury in the event of a seizure. Children with Lennox-Gastaut syndrome (LGS) often wear safety helmets to prevent injury during epileptic seizures.
Falls from tonic or atonic seizures (drop attacks) pose a serious risk of injury.1 A helmet might be a necessary precaution.1
Modest changes to your home can make life easier and safer.
Helmets can be purchased at medical supply companies, sporting goods stores, and in the rehabilitation department of some hospitals.2
The helmet should:
In general, hockey helmets are a good choice. Some professionals suggest avoiding bicycle, boxing, football, and baseball helmets because they do not meet all the criteria above.2 Make sure to speak to your child's doctor about finding the right type of helmet to keep your child safe.
- Have an adjustable chin strap2
- Be sturdy enough to last2
- Have snug fit around the head2
- Still be comfortable2
If your child often falls in the same direction, consider helmets that protect certain parts of the head better.2 For example, those who often fall forward may need better face protection.2
Caregivers may consider custom-fitted helmets, such as those made by Danmar Products, for people with mental and physical challenges. There may also be locally based companies and resources that offer appropriate solutions.
If your child uses a wheelchair, your home may need construction work to become accessible. This means more than putting a ramp on the front porch. Wheelchair accessibility may require widening doorways, rearranging furniture, and possibly remodeling certain rooms to allow for better access. For example, safety bars in the bathroom may be needed to assist your child getting in and out of the bathtub.3
Modest changes to your home can make life easier and safer. For example:
Changing your home is a big step in adapting to life with LGS. But it is just one example of the ways LGS requires your family to be flexible. As families adjust to living with LGS, they must remember to find ways to help each other deal with the stress.
- Install tub rails or seats to help prevent falls in the shower.
- Lower the temperature of your household's water to prevent burns.4
- Put an intercom in the bedroom to listen for changes that might signal your child is having a seizure.4
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||Camfield PR, Camfield CS. Epileptic syndromes in childhood: clinical features, outcomes, and treatment. Epilepsia. 2002;43(Suppl 3):27-32.|
||Loughlin J. Buying a helmet. Epilepsy.com. http://www.epilepsy.com/epilepsy/safety_helmet. September 26, 2003. Accessed August 20, 2012.|
||Quality of life. LGS Foundation Web site. http://www.lgsfoundation.org/qualityoflife.html. Accessed September 27, 2010.|
||Lennox-Gastaut syndrome. Epilepsy Foundation of Victoria, Australia Web site. http://www.nevdgp.org.au/info/epilepsyf/info/lennoxGastaut.html. Accessed September 27, 2010.|